Skip to main content

We cannot direct the wind but we can adjust the sails.

This has been quite a crazy weekend for the Serrano-Mateos. Carmen was still retaining a good amount of fluid, so she stayed in the hospital for further observation. Saturday Tom and I hung out with Carmen as Jose had to go be on-call. Since she had been on her feet for a good part of the day she was tired and in pain from the fluid building up in her feet and lower legs. Tom and I massaged her feet, which definitely decreased the fluid and pain. She was pretty exhausted, but still managed to sit at her table to have a delicious dinner that Daniel made for her.


Daniel stayed the night with her, while Tom and I came back to Bethesda to celebrate Kim and Anya's birthday party. As terrible as it may sound, it was nice to have a night where I could be "normal" and hang out with my friends like any other 20ish year old. Not that I don't enjoy being with my mother, but all this has been very overwhelming and to have a night where I don't spend most of the night thinking about my mother's painful situation was a welcomed relief.

On Sunday they ran more tests, did some CT scans to verify if the stents were effectively keeping her vein open and facilitating circulation. The stents are fine, but the liver tumors have grown a visible amount since last week. We are still waiting to hear back from the antibody trial chemo. It may be possible for her to enter the trial as a "sympathy treatment"-- so not actually part of the study, but to try and see if it can help her out.

Comments

Popular posts from this blog

no bad news is good news

The doctors at Suburban decided to transfer Carmen to Johns Hopkins, and oh what a transfer it was--her ambulance got a flat tire, and her backup ambulance got lost so 2 hours after leaving Suburban she finally arrived at 5am at Hopkins. At Suburban they suspected an infection, but after a CT scan saw that the tumors were slightly compressing the inferior vena cava, which became the prime suspect of the fluid retention. If this was the case they would put in a stent to help keep the vein open. But, luckily the medical oncologists at Hopkins decided to do a scan of the legs to see if anything else was going on.  The scan showed that she has two blood clots one in each of her legs. So, the doctors have decided to do a de-blood-clotting procedure, where they stick a catheter in each of the affected veins and introduce a medicine that will dissolve the clots. Unfortunately, she will have to be in the ICU after this procedure to monitor the effects of the blood thinner closely. Hopefu...

The Best Birthday Present

My mother gave me the best birthday present ever—her release from the hospital! We took one last walk to the administration building to visit the massive Jesus statue and say a few words together before heading home. Carmen looked wonderful today after a good night’s rest (she was able to sleep through most of the night yay!) and another solid breakfast. The cortisone has been really effective in reducing her discomfort and nausea, so she is able to actually move around during the day. Unfortunately the cortisone is also responsible for some water retention, which is a little worrisome for Carmen because of the additional weight and the liver/kidney function implications. On the bright side, Carmen does look better with the extra weight. We all went out to O’Donnell’s in the Kentlands for a delicious birthday “lunch” (which really was at American dinner time). Having my entire family and Tom together to celebrate my 25 th birthday, was the best thing I could have ever asked for...
Today we are gathered to recognize the life of caring woman. To many, she was Dr. Carmen Mateo or just Carmen, and to a few of us she was Carmencita (Mari Carmen to her sister who just arrived from Spain), or mom to my brother Daniel and I. She was and still is an inspiration to us all, with her kindness, grace and strength. She was selfless always putting everyone first, whether it was a stranger, a patient, or her family.   As she would say, lo mas feito para mi. Carmen was full of love for the world, always wanting to take care of everyone. She touched the lives of all the patients she encountered while at NIH and in her everyday life. She was the type of person that you would meet once, and after a lengthy conversation, oh how my mother could talk, would make you feel like you were special. She is unforgettable; her inner beauty always radiating through her twinkling eyes and quirky smile. She had this aura of energy surrounding her that captiva...