Skip to main content

Deja vu

A recent post on facebook about a couple's fight against breast cancer reminded me of so much my family went through during my mother's fight against lyposarcoma. While looking through the pictures and watching the videos, a flood of memories and emotions washed over me. I felt the sadness, uncertainty, fear, and determination in the woman's expression and couldn't help but see my mother's image. 

Disease has a funny way of snapping us into reality--reminding us that we are mere mortals and that life is fleeting. 

Right now I am facing my own health battle. In mid December I was diagnosed with ulcerative colitis, a type of chronic inflammatory bowl disease where the lining of my colon is essentially self-destructing. Upon being diagnosed, I had this flash back to the moment when I first found out that my mom had cancer. The shock, the questions, and anger. What was this disease? How long would I live? As a chronic illness how would it change my life forever? What could I do to make it better? Why me? Just as my body was getting healthy why did something else have to go wrong? Why did I have have to go through all this?  Why why why me? Hadn't I suffered through enough for at least a few years? As these questions raced through my mind, I remembered my mom. I remembered her determination to beat her disease and her indiscriminate will to live. If my mother could fight against a death sentence with optimism and courage, then why was I wimping out over a chronic illness that has proven treatments? So when I get scared, I remember her, and remind myself that I have too much to live for and that I will find a treatment. 

Sometimes though it is hard to be optimistic, and I wish I could be as fearless as my mother. After going through my first two treatments I found myself feeling better, only to find that in fact my disease had spread and had gotten worse. It's this false sense of security that is so painful--like when my mother went a whole year in remission, completely tumor free, only to find that a year later her cancer was back with vengeance. How did she not lose hope and give up? I'm sure she felt this same disappointment and dispair that I felt when I found out that despite my improved condition my illness had gotten worse. Though I have the support of my amazing family, I wish I had my mom to tell me how she got through her rough patches. I wish she was here to remind me that I will get through this because I have no other choice but to get better. She always knew just what to say and do. 






Comments

Popular posts from this blog

The feared M-word

 Today I felt the pain of mortality stab me in the heart. I have always been optimistic of my mother’s condition, knowing that with optimism and hope we could battle her cancer and finally overcome her disease. These past few years since her diagnosis of retroperitoneal liposarcoma in October/September of 2005 have been a rollercoaster of highs and lows, getting through it all. I tried to be strong for my mother, show her the strength she has within, assure her that she is doing everything she can to heal herself, and that surely she is on her way to recovery. I thought that in believing in her and her strength that she would be able to overcome anything. With every returning tumor she was better equipped to heal her body, to teach her body to heal itself. I was there supporting her through her surgeries, her trial chemo treatments, always there letting her know that she was on the road to recovery. Today after finishing her second round of a trial chemo that seemed hopefull...

The Best Birthday Present

My mother gave me the best birthday present ever—her release from the hospital! We took one last walk to the administration building to visit the massive Jesus statue and say a few words together before heading home. Carmen looked wonderful today after a good night’s rest (she was able to sleep through most of the night yay!) and another solid breakfast. The cortisone has been really effective in reducing her discomfort and nausea, so she is able to actually move around during the day. Unfortunately the cortisone is also responsible for some water retention, which is a little worrisome for Carmen because of the additional weight and the liver/kidney function implications. On the bright side, Carmen does look better with the extra weight. We all went out to O’Donnell’s in the Kentlands for a delicious birthday “lunch” (which really was at American dinner time). Having my entire family and Tom together to celebrate my 25 th birthday, was the best thing I could have ever asked for...
Today we are gathered to recognize the life of caring woman. To many, she was Dr. Carmen Mateo or just Carmen, and to a few of us she was Carmencita (Mari Carmen to her sister who just arrived from Spain), or mom to my brother Daniel and I. She was and still is an inspiration to us all, with her kindness, grace and strength. She was selfless always putting everyone first, whether it was a stranger, a patient, or her family.   As she would say, lo mas feito para mi. Carmen was full of love for the world, always wanting to take care of everyone. She touched the lives of all the patients she encountered while at NIH and in her everyday life. She was the type of person that you would meet once, and after a lengthy conversation, oh how my mother could talk, would make you feel like you were special. She is unforgettable; her inner beauty always radiating through her twinkling eyes and quirky smile. She had this aura of energy surrounding her that captiva...